Posted in family life

hiking South Mountain with littles

Winter is one of the best times of year for hiking here in the desert! The skies are deep and clear, the air is cool and crisp, and the plants are somewhat green (depending on rainfall… spring will be better for plant life if the flowers bloom, though).

When climbing a mountain, it is always logical to become animals more suited for the task; the boys decided to be ibex and spent a large portion of the trek on all fours:

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They also spent time as mountain lions, and we discussed what the city would do if a large predator such as a mountain lion or a bear were actually living on a mountain so closely surrounded by homes (probably – hopefully! – relocation. Rondel seemed to think it would be more exciting to have it stay on the mountain and randomly pop out to eat people.)

Aubade mostly stayed in the backpack, bopping my head and laughing, because she walks quite slowly still, but she did get down a few times to stretch her legs and enjoy the desert firsthand:

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The most wonderful thing about a hike is that simply being outside, in the wild, is so freeing and refreshing an experience that even a complete meltdown for the entire return leg of the trip isn’t enough to prevent the boys from wanting to go again! Rondel keeps asking me when we can climb another mountain… I just think, hmm, I need to rebuild my emotional reserves here, that was rather exhausting for me. I am so glad that it didn’t give him a bad taste for hiking in general, though. I will just need to be more aware of his limitations as he often fails to notice his own fatigue until he is at the point of emotional and physical collapse (it’s a sensory processing thing – difficulty with interoception).

And it was a great reminder for me of why I have always loved hiking! There is something unbeatable about the path dropping away behind you and the sky stretching out wide above you and the mountain rising up before you and the wind lifting your wings as you walk over the dusty and rugged desert miles. They say exercise is good treatment for depression but really I believe that outdoor exercise is key – it is for me, at any rate 🙂

(If you’re wondering, we hiked part of Telegraph Pass Trail on South Mountain! The first part is paved which makes for an easy start and, more importantly, an easy finish for tired little feet. If you have more stamina than my boys did, you can make it all the way up to the top of the mountain where the signal towers are!)

Posted in quotes

what is autism?

The complex set of interrelated characteristics that distinguish autistic neurology from non-autistic neurology is not yet fully understood, but current evidence indicates that the central distinction is that autistic brains are characterized by particularly high levels of synaptic connectivity and responsiveness. This tends to make the autistic individual’s subjective experience more intense and chaotic than that of non-autistic individuals: on both the sensorimotor and cognitive levels, the autistic mind tends to register more information, and the impact of each bit of information tends to be both stronger and less predictable […]

The realm of social interaction is one context in which autistic individuals tend to consistently be disabled. An autistic child’s sensory experience of the world is more intense and chaotic than that of a non-autistic child, and the ongoing task of navigating and integrating that experience thus occupies more of the autistic child’s attention and energy. This means the autistic child has less attention and energy available to focus on the subtleties of social interaction. Difficulty meeting the social expectations of non-autistics often results in social rejection, which further compounds social difficulties and impedes social development. For this reason, autism has been frequently misconstrued as being essentially a set of “social and communication deficits,” by those who are unaware that the social challenges faced by autistic individuals are just by-products of the intense and chaotic nature of autistic sensory and cognitive experience.

(Please read the complete article here – it is the best brief introduction to autism that I have ever come across.)

I want to be careful about oversharing sensitive aspects of Rondel’s life, so I’m not going to list specific examples here, but I will say that this description makes so much sense in understanding him – his reactions to stimuli, his emotional swings, his physical being and course of development. What is more, it gives me that understanding without making him seem broken or deficient: he is simply different. His differences may mean that he requires extra support and accommodations in a world designed for people whose minds don’t work quite like his, but they don’t mean that he needs to be fixed or changed. He is who he is. He is beautiful the way he is. And I love him for who he is, without changing anything.

(In case anyone was wondering, we don’t have a diagnosis for Rondel right now, but in seeking to understand and support him we have found that a lot of resources aimed at autistic individuals are quite helpful for him, and descriptions like this one in particular lead me to believe that he could most likely qualify for an official diagnosis under the (very pathologizing and depressing) terms of the DSM. So while the very long diagnostic process is underway, we’re going with “suspected autism” over here, per his pediatrician.)

Posted in family life

dance to the music no one else can hear

So now, having just explained in great detail why I think special ed preschool could be a great help for Rondel despite my misgivings about the public school system in general, I am going to argue the other side against myself. Hopefully writing this out will help me make a decision! And if not, hopefully it is helpful or interesting to someone else in a similar spot.

First, you should know this about Rondel.

When my son is in a highly stimulating, fun, chaotic environment, his energy ratchets up so high that he can’t always control it. Simultaneously, especially if he is hungry or tired (or if another kid is pushing his buttons), his anxiety often escalates as well. Either of these things could be a struggle independently, but when combined they can make situations very difficult for him. His body feels out of control, his emotions feel out of control, and his external environment feels out his control. In response to that, he will often take actions that on the surface appear irrational or bizarre: he may get overly aggressive in his play, wrestling after his friends have asked him to stop; he may try to run away to escape the chaos; or he may break down into incoherent tears.

Birthday parties, amusement parks, playgrounds, noisy restaurants, music class, movie theaters, and other noisy places can all cause sensory overload and meltdowns. Vigorous physical play may be avoided because of concerns about falling, sensory overload, and the potential for explosive outbursts and aggressive behaviors due to fight-or-flight reactions. Perhaps most unfortunately, the kinds of things done by the teachers who work hardest to make their classrooms fun for most kids – busy, colorful places with lots of “activity stations,” fun music, dancing, games – may be precisely the things that aggravate kids with SPD. As a result, these teachers may find that the harder they work to make class enjoyable and to involve these kids, the more they shut down or overload. It’s hard to imagine a more potent recipe for frustration and misunderstanding on both sides.

Brock Eide, The Mislabeled Child


Second, you should know this about me.

One of the greatest struggles in my life – a struggle that I have heard countless times in the lives of my friends and family as well – is feeling that I don’t belong: that there is no group of people among whom I can be completely myself and at the same time completely loved. It is out of this struggle that my parenting philosophy was born. My goal as a mother is to give my children a relationship (and ideally a whole family community) in which they will be listened to, understood, and unconditionally loved. Whatever societal forces are pressuring them to fit into a certain mold or to act a certain way, I want our home to be the safe place in which those forces have no power.

Now, I also have hopes and expectations for my children. I want them to be thinkers and readers; I want them to be wise and compassionate; I want them to love deeply and speak kindly. But even the wisest person has moments of foolishness; even the kindest person has words they regret. In those moments, I want my children to know that my love will not cease or waver, that I will always love them for who they are even as I help them grow and mature. And I want them to know that the rate of their growth is never a cause for shame, regardless of how slowly they may be progressing. The direction and the effort are the things that matter.


With both of those things in mind, putting Rondel in a special preschool designed solely to help him acquire certain skills by a certain deadline seems antithetical to my whole concept of parenthood. He is not a flowering bush that I can freely manipulate by well-timed applications of different fertilizers or hormones; he is his own person, uniquely designed and gifted, with his own path and timeline to follow. It is helpful for me to know the ways in which he is different than “normal,” so that I can anticipate his struggles instead of setting him up for failure, learn how to help him through difficult situations instead of flailing about in the dark, and access the accommodations he needs to thrive – but it isn’t helpful to focus on those differences as things that are “wrong” with him and try to fix them or train them out of him.

And my fear is that he will think just that: that we believe his way of being is inadequate or wrong, that we don’t accept him as who he is, and that we are willing to put him in an environment that stresses his sensory and emotional systems to the point of overload in an attempt to change him into someone else. It’s hard to think of a better way to demolish a child’s confidence in himself or to damage his trust in his parents’s love and understanding. When the music plays that only Rondel can hear, I want him to dance to that beat with freedom and fullness, holding nothing back in his pursuit of the calling for which God has designed him, no matter how strange or awkward that dance may appear to those who are deaf to the song. Speech therapy we can get at a private clinic, without needing to compromise our ideals in the process; the other skills he needs for life will grow in time, as he learns their value, in the context of love and peace and belonging.

 

 

 

 

 

 

 

 

 

Posted in musings

when tools come with tainted memories

I grew up hearing horror stories about public schools.

Every time we drove past one, my dad would comment on the chainlink fences, the buzzing alarm bells, or the thick small-windowed walls. He would tell us about Mrs. Weinstein, his fourth-grade teacher, who was so nasty as to apparently have burnt a traumatic scar into his memory. He would regale us with the tale of how in elementary school he would ask for a bathroom pass and just scream in the bathroom at the top of his lungs because he was so bored/pent up/overwhelmed by the classroom environment. He would call them “jails for kids” (although my mom would always gently reply that it was hyperbolic to go that far).

My mom didn’t have nearly so many negative things to say, but I knew that she dropped out of high school and worked her way through community college and university to get a master’s in engineering, and considered self-directed, intrinsically-motivated learning to be far more valuable and efficient than teacher-dictated, extrinsically-demanded education.

After I met my husband, I learned how he had been bullied through elementary school, to the point of being anxious, angry, depressed, and aggressive as even a young child – his innate friendliness met with rejection, and his self-confidence and self-esteem dealt crushing blows that he still sometimes struggles to overcome.

And so when the supportive, understanding, encouraging women in the special needs ministry at my church encouraged me to seek an evaluation through the public school district, to see if Rondel qualified for any free services, I was apprehensive, wary, and unsure. Now that his evaluation is past and I know that he does qualify – now that the registration and enrollment paperwork sits in front of me on the table – I am still all of those things.

The woman who would be his teacher is, from what I can tell, an energetic, passionate, and intelligent person, who deeply cares about her students and all their unique ways of being (of which there are certainly many in a special ed preschool!). Her classroom and schedule are well-designed, full of all the things young children enjoy and all the activities that strengthen and challenge their developing skills. She even told me that based on my description of Rondel she would ask the OT to do a sensory consult for him in class and potentially give him access to occupational therapy for his sensory difficulties and their emotional sequelae. My concerns do not rest with her, but with the whole philosophy of standardized, forced education in general.

During our IEP meeting, the evaluators kept mentioning that this or that skill would be “necessary for kindergarten next year.” To succeed in kindergarten, Rondel would have to learn to sit and pay attention, to be quiet and listen for the majority of the time, to participate in group activities instead of sitting on the edges doing his own thing, to hold a pencil or crayon with enough finesse to write letters and numbers, to respond to directions, and to speak intelligibly. And critically, he would need to learn all of those things by August. To succeed in life, it will be useful and courteous to know how to sit quietly and pay attention to other people; it will be beneficial for forming friendships to be able to engage in group activities and respond appropriately to social cues; it will be helpful to be able to write and draw, but not necessary in an increasingly technical world; and it will be of great importance to speak so that others can understand, particularly for a child who loves to talk as much as he does! But there wouldn’t be any deadline on his acquisition of those skills. Without the impending shadow of kindergarten hanging over him, there would be no rush for him to develop those abilities in his own way and at his own pace – with the exception of his speech.

And it is because of the integrated speech therapy that I am considering preschool as a viable option for Rondel at this point, despite the negative backstory I have for public schools, and despite my plan to homeschool. No matter where the rest of his life takes him or what learning and education look like for him, he will be able to do better, with less frustration and fewer tears, if he can communicate his needs and ideas with the people around him. I want to give him this opportunity now to learn the skills he will need to do that, while he can still do “school” for only 7.5 hours a weeks instead of being expected to fit his life around an all-day, every-day schedule of external demands and schedules. If he grows in his other areas of weakness along the way (especially in social and sensory areas) – so much the better! One fewer hurdle to overcome later!

And if it triggers his sensory issues to the point where he has increased anxiety and meltdowns, we can pull him out. Trying the system out, in an attempt to help Rondel, does not mean we are tied to it forever – or for any arbitrary length of time, honestly. It is all about what works best for him, at this moment, in this context. If to him it feels like a “jail”, if all he wants to do is run away and scream, if it feels like his heart is being crushed – well, unlike my parents and my husband, he won’t have to stay in that environment for years while it molds his character and personality. For us, it can be just another tool in our toolbox.

Posted in family life

sensory play without sensory issues

As babies and toddlers, neither of my boys especially enjoyed being dirty and playing in the mud. I still remember the first time Rondel explored the soil in our garden of his own accord, and the poignancy of watching him touch the moist dirt without panic or revulsion (he was better with sand, but dirt was difficult, and mud impossible for a long time). Limerick would tolerate and investigate things, but never sought out the sensations, preferring to watch and observe; there wasn’t the overt sense of something being off or abnormal that there had been with Rondel, but there also wasn’t the “typical” childhood pleasure of immersing oneself in those physical sensations that I remembered from my own experiences.

Aubade, however, actively seeks out the dirt, and very visibly relishes getting wet, dirty, and muddy. While this of course comes with its own challenges (any ideas for persuading a baby not to shovel fistfuls of dirt in her mouth whenever the opportunity arises?), it is so incredibly refreshing for me to have a baby who initiates that kind of interaction with her environment. She is so bent on exploring and experiencing the world around her, with no hesitations, anxieties, or sensory discomforts to hold her back, and I love watching her!

Posted in art, family life

finger painting in the new house

One of the best features of our new house is the large, open island counter. There’s plenty of space for chairs to be pulled up all around it for the boys to stand on, and ample room for projects and supplies to be spread out. We’ve obviously used it a lot for baking (so much nicer than my old tiny kitchen for rolling out pizza crust!), but I’ve also been trying to use it for crafts and other messy or artistic activities.

I decided to try out an unattributed edible finger paint recipe I found on Pinterest which was basically cornstarch, sugar, and water cooked together. The boys were just as excited about making the paint as they were about actually painting – they helped me measure the ingredients, and then helped me decide which colors to mix up in each of our little bowls.

The paint had a gloppy, jelly-like consistency – I would hesitate to call it paint, and I wouldn’t recommend the recipe. It was fun to squeeze and mush around, though!

The boys experimented with the paint for a little while on paper, but their main goal was to paint themselves:

Rondel painted himself to look like a bear and even gave me a roar for good measure!

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And of course, since it was edible, we let Aubade join in when she woke up from her nap, to her great delight:

An additional benefit of the whole exercise (besides the creative fun and sensory play) was that the boys agreed to have a peaceful bath afterwards and didn’t even complain about having their hair washed!

One thing I have noticed about the boys with these kinds of projects is that Limerick gets very focused on the process, carefully and meticulously repeating the same motions until he can perform then to his satisfaction; he has a definite goal in mind and won’t easily be distracted until he’s accomplished it. Rondel, on the other hand, is far more exploratory with the medium at first (that was his hand in the bowl of yellow paint above, and he in general loves the tactile sensations of these types of activities once he gets past any anxieties) but seems less self-directed than Limerick. If he has a goal, he doesn’t always remember it or stay focused on it long enough to make much headway towards it. And yet he still seems interested and engaged with the activity, so that’s good. I guess it is just two different ways of approaching the world!

Posted in family life

rondel and the wearable chewies

If you’ve been reading here for a while, you probably remember than Rondel has some sensory sensitivities – nothing extreme, but he does tend to want something to lick/chew when he gets anxious, tired, or overwhelmed, and for some time he had just been licking his hands. We were trying to help him get over that habit, for sanitary and social reasons, when I realized that it might be more helpful to give him something to fidget with instead of simply trying to make him stop fidgeting in general. I had noticed that he liked to fidget orally with wooden toys (like unfinished wood blocks) much more than with plastic toys, so I set out to find a wearable wooden fidget for a reasonable price.

This was much harder than I had anticipated.

While there is a large market for wearable chewies/fidgets, the majority are made of food-grade silicone, which I already knew Rondel wouldn’t like enough to use instead of his hands. I looked through site after site until I finally stumbled upon BiteMeBeads, an Etsy store where I could purchase unfinished wood pendants in various shapes, as well as strings and clasps to make my own necklaces out of them. I got two of the silicone pendants just in case (at the very least they’ll be good teethers for the new baby) and two of the wood, and waited anxiously for their arrival.

Well, it has been over a month now and I’m happy to report that the wearable chewies (as Rondel calls them) have been a huge success! Unlike a toy, Rondel can keep this with him while still having both hands free, and it’s less likely to be set down and lost; unlike his hands, they won’t get chapped in the winter, garner him negative attention, or be as likely to spread germs. And for the most part, he has stopped licking his hands and chews on the pendant instead (the fish-shaped one is his favorite). He even told me a couple Sundays ago that one of the girls in his class had told him she liked his fishy chewy – he was pretty happy about that 🙂

So – if anyone has a similar situation with their preschooler, that is my whole-hearted recommendation! Obviously the oral fidgeting was helping him cope with his sensory input or emotional state, and this was a way to adjust that coping strategy to fit a wider range of situations.

Posted in family life, Uncategorized

oobleck!

After discovering Bartholomew and the Oobleck, by Dr. Seuss, by sheer random luck at the library last week, and enjoying it on the basis of its story alone for several days, I told Rondel that oobleck was actually something we could make at home. I wasn’t sure if he would want to, but he spent the whole next day (while I was at work) telling my husband how he was going to get to make oobleck with Mommy, so at that point it was going to have to happen!

And happen it did:

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Oobleck is, in its simplest form, a mixture of cornstarch and water. We added some food coloring to try to make it green like it is in the Dr. Seuss book, but we obviously should have added more! The proportions of the two ingredients have to be just right (approximately a 1:2 water:cornstarch ratio), but when they are, the mixture stops behaving like a liquid or a solid and becomes a non-Newtonian fluid. In other words, the way it responds is based on the force you apply. Let your hand sink down slowly into the bowl and it feels like water; try to pull your hand back out quickly and the substance instantly hardens around you. (For a good overview of the science, check out this article from Cornell).

I spent a lot of time just playing around with it on my own before I could convince the boys to touch it, but after they got over the initial weirdness of it they didn’t want to stop. Rondel in particular enjoyed the odd sensation of it and kept immersing his hands in and pulling them out again over and over and over. In fact, because our air is so dry, I had to keep adding water to the oobleck so he could keep playing with it as long as his interest held – which ended up being about an hour and a half, and would have been longer if we hadn’t desperately needed to put Limerick down for a nap.

Oobleck is definitely a messy activity. Because of the way it sticks to your skin, it’s not going to stay nicely contained in a mixing bowl! However, since it’s just cornstarch, it does hose off of everything fairly easily (much to my neighbors’ relief… the newly returned snowbirds aren’t used to the kids playing in the common area and were worried about the mess). It will also dry out your skin, so it might be good to have lotion on hand for after the clean-up. This was my first time playing with it as well, although I’ve read about it before, and I highly recommend it (and the book!) for both you and your kids!

Posted in family life, Uncategorized

sensory bedtimes

After a grueling bedtime battle a couple nights ago, I decided our bedtime routine needed some adjustments, for Rondel’s sleep and my sanity.

Rondel has a history of sleep troubles. As a baby, he became overstimulated extremely easily and had difficulty calming his mind and body back down, even when he was very tired. We would mostly just have to pace back and forth holding him to help him slowly ease down into sleep; I could recite poetry to him but singing almost always made him cry. We could snuggle together lying down if he was in just the right mood: otherwise it was either not enough stimulation (and more pacing was needed) or it was too much stimulation (and the end of the world was at hand until exhaustion won out, since he panicked if he was left lying alone on the bed). Despite my personal fondness for co-sleeping, Rondel transitioned to his own bed early on, because any movement or noise during the night would wake him up, which would make him want to nurse, which would make him pee, which would wake him up again in a vicious cycle.

As he got a little older, we had countless tear-filled nights where we tried to separate the bottle from his sleep associations, hoping that it would help him self-settle after a midnight half-waking, and also reduce the peeing problem noted above. It did help – he doesn’t wake at all anymore to pee, and has only had two or three nighttime accidents since he learned to use the potty – but it was a long and painful process. We installed blackout curtains in his room to try to help him stay asleep longer and fall asleep more easily; we have either the ceiling fan or the humidifier on every night to create enough white noise that the sounds of the house or the nearby roads don’t wake him up. I even tried various essential oils, though I didn’t notice that they had any impact.

Lately, he’s been sleeping fairly well, and I had been happy with how things were going. We’d finally established a consistent routine that worked for both boys together without being overly lengthy or complicated, and while Limerick had been waking up with bad dreams or wet diapers, Rondel had mostly been sleeping through the night (a good 10 hours every night at that!). But that bedtime a couple nights ago was an entirely different beast – yelling, roaring, tears, and a very sleepless Rondel until about 3 hours past his typical bedtime. I knew none of us could handle that happening on a regular or even semi-regular basis, so I spent my down time at work the next day researching sensory/Aspergers/ADHD bedtime tips (not that he fits under any of those labels overall, but his sleep issues have some overlap). We already had the basics covered, with the blackout curtains and white noise, but one idea that I found intriguing was using some sort of a nightlight, particularly a non-constant one like a lava lamp, to give the mind something to keep it occupied in a monotonous way until it can wind down into sleep.

Tonight, by somewhat of an accident, we ended up with a flickering electric candle in a cut glass box, up on a shelf where Rondel could see it lying down, and he fell asleep with fewer random sounds/questions/comments/dinosaur roars than he has in weeks. He seriously just lay in bed, watched the candle flicker, and fell asleep in less than 20 minutes. I couldn’t believe it.

Maybe it was just a coincidence, but I’m going to try it again just in case!

Posted in family life

Preschool aggression

On the way home from church on Sunday Rondel very seriously let me know that he needed to talk to me about something that happened; having had such talks after Sunday School in the past with him, when I could tell something was bothering him, I expected it to be a story of some social altercation that didn’t end up going well, and I was right.

First of all, he told me that another boy had kicked him.

“What happened right before he kicked you?” I asked.

“I kicked him!” he announced.

Cue head shake. Of course a preschooler is going to kick you after you kick him!

After some more probing we unearthed that the other boy had gotten close to Rondel while he was playing, and Rondel didn’t want him to be there and so kicked him to make him move. Ok, fairly typical of a 3-year-old, but not ideal. I wish one of the leaders could help guide him through those situations instead of letting his insecurity and overstimulation get the better of him and turn all his social interactions sour 😦 I just don’t know whether to laugh because it’s normal behavior, or worry about his aggression and his potential to make friends!