Posted in sqt

{sqt} – disability rights, epidemics, communication, love, and lemons

  1. Some good news this week – the FDA has banned the electric shock devices used by the Judge Rotenberg center to control disabled (primarily autistic) patients. From the ACLU statement in response to the ban:

    “Using what are essentially human cattle prods to shock people with disabilities into compliance is simply barbaric. For over 40 years, the disability rights movement has fought to ban the use of abusive ‘behavioral treatment’ methods such as these ESDs. The FDA’s decision today banning their use should be seen as a necessary and important first step to securing a broader prohibition on the use of aversive interventions.
    “People with disabilities deserve the right to be supported with dignity and respect, and there are no circumstances under which they should be subjected to pain as a means of behavior modification.”
    – Susan Mizner, director of the ACLU’s Disability Rights Program
  1. Some not-so-good news is that the novel coronavirus COVID-19 does seem to be of potentially greater concern than I originally thought (in line with the flu in terms of transmission rate and severity, far lower in total number of cases so far, but still concerning to researchers and health care workers because it is an unknown agent). In response to that, one of the labs we frequently work with at the university is optimizing protocols for high-throughput diagnosis and training people to run those protocols; if an emergency situation does occur where the load of potential cases is very high, they’ll be equipped to run 24/7 and process 1000-3000 tests a day. (I say “they”, but I’m hoping to run through the training myself so I can be part of the public health response if the epidemic becomes a serious issue locally. I guess I’m nerdy enough that the opportunity to be involved with a novel virus on even a small scale is just purely exciting to me 😛 )
  1. Coming down to a more personal scale, communication and relationships are so hard. Even when two people are trying as hard as they can, misunderstandings can happen and feelings can be hurt and it’s just all around miserable – so much so that even knowing how a good conversation about something meaningful can fill up my heart like food and drink, it’s tempting to just not even try sometimes. But isolating myself doesn’t lead to health, or happiness, or holiness; it leads to bitterness and selfishness and despair. My sister shared a quote with me today that speaks to this, and of far more than this – of the value and even necessity of pursuing relationship in a self-giving way, of staying alive and invested and connected not for your own sake but that you might in so doing pour out your life for the needs of others and open yourself to be so poured into by others (and I don’t have access to the original formatting of the quote, unfortunately, since that can be significant with poetry):
"I don't want to feel better; I want to know better.
I should have known that God is not in the meal
but in the sharing of the meal.
I should have told you that holiness resides in needing each other,
in acts of survival made generous."
- Julian K. Jarboe, "Everyone on the Moon is Essential Personnel"
  1. Speaking of powerful quotes from books, I came across this one and realized that far too often I am impatient with and even contemptuous of weakness – starting with myself, but sadly spreading out to those around me as well. I do not often respond to my own struggles with compassion and grace, and that attitude of harsh, high standards can carry over into my interactions with other people. Having had the issue brought to my attention, I’m trying to be extra intentional about cultivating a spirit of love and gentleness instead: to offer open arms and a listening ear instead of an eye roll or an “I told you so”; to wait calmly for someone to process and express themselves instead of letting my attention drift away from them in impatience or disrespect; to make space for struggle and failure and fear and meet people where they are instead of expecting them to succeed in a way or time that’s convenient for me.

    “No one is of the Spirit of Christ but he that has the utmost compassion for sinners. Nor is there any greater sign of your own perfection than you find yourself all love and compassion toward them that are very weak and defective. And on the other hand, you have never less reason to be pleased with yourself than when you find yourself most angry and offended at the behavior of others.”
    – William Law, cited in Sacred Marriage by Gary Thomas
  1. One of the great blessings of cultivating this gentleness and patience is seeing the happiness and peace it gives to those around you. I think as a parent of small children it’s easier to see things like that – young children are both more sensitive to their parents’ attitudes and more expressive of their own feelings. For example, Rondel has been working really hard on riding his bike the past few weeks. He has training wheels, but he still feels very panicky about balancing, steering, and just generally maintaining control of the bike, especially at faster speeds. It is so easy to become frustrated when he bikes at a slow walking speed – Limerick racing ahead then having to wait for him to catch up – particularly because he doesn’t look anxious at that speed. Some part of my mimd interprets his actions as laziness or an unwillingness to try when really they stem from anxiety and poor motor skills, and my resulting impatience just makes him feel worse. But when I remember to re-evaluate in terms of gentleness and grace, I can see the anxiety and try to help him work through that root problem so that biking can be something fun and energizing for him like it is for his siblings.
  1. Another thing that I’m learning as a parent is how little control we really have in the interests our children develop. Aubade wears princess dresses as often as she can, claps with delight at the thought of going to a shoe store, revels in sparkles and stick-on earrings, and pretends every playhouse is a “princess house.” Just. What. I have no words. Aside from having to tell someone with no concept of monetary value that she can’t have all the shoes she desires, though, it’s actually pretty fun 🙂
  1. Finally, I got a bag of lemons from my mom and need to use them up this weekend! I’m definitely going to make a jar of preserved lemons, now that I know I like them and won’t wait six months before breaking into them, as the batch from last year was beginning to get mushy (still tasted good though). I’m also contemplating making a jar of lemon marmalade, but I’m debating whether or not to add some sort of accent flavor to it. I could go a slightly savory route with rosemary (I made a rosemary and lemon shortbread last week that I loved, and this would be a similar flavor profile), or more Middle Eastern with cardamom (my favorite spice of all time). Or I could keep it straight lemon, simple and bright. Any thoughts?

Head over to This Ain’t the Lyceum for the rest of the Seven Quick Takes link up! For fellow homeschoolers, there were some helpful/thought-provoking posts on that topic this week that I found encouraging 🙂

Posted in wwlw

what we’re learning wednesday: episode 3

Today we went to the grocery store and learned about the way peaches smell when they’re ripe and good to eat (and also plums). I learned that Limerick will pull the leaves off of strawberries before he eats them, while Aubade will eat them leaves and all.

We learned about the strength of the wind in a storm when we saw huge branches torn off of trees by the monsoon that came through last night.

We learned about the hiddenness of the wind, how it can only be inferred by the consequences of its presence, last night as we watched that storm crash down the street and read Christina Rosetti’s poem about the wind:

Who has seen the wind?
Neither I nor you:
But when the leaves hang trembling,
The wind is passing through.

Who has seen the wind?
Neither you nor I:
But when the trees bow down their heads,
The wind is passing by.

Rondel wondered at how we can feel the wind when it presses against us even though we can’t see it coming with our eyes.

Today, we talked about how scary things can be when they are new and unfamiliar and unknown, when really they are good and beautiful things, because we discovered some books on that theme at the library: Tiny’s Big Adventure by Martin Waddell, What Do You Do With a Chance? by Kobi Yamada, and Little Frog and the Scary Autumn Thing by Jane Yolen.

Earlier this week we made a 10×10 number chart and discovered that if we covered up all the odd numbers with flakes (all the numbers that can’t be split into two groups, as the boys say), the even numbers that were left all lined up in neat columns and had 2, 4, 6, 8, or 0 in their ones place. We also spent a lot of time figuring out which numbers would be visible if we covered up the ones that couldn’t be split into three groups, but we didn’t discover a reliable pattern yet for those numbers. (Limerick loved figuring it out for each number though, so I’m sure he’ll find the pattern pretty soon).

Rondel watched a documentary about the Galapagos islands and learned about an iguana that laid its eggs in nests of volcanic ash and so couldn’t leave the volcano summit of one of the islands, and also learned about the blue-footed booby for the first time and was impressed by how blue its feet really are!

And I learned that the best way to turn around a bad day is to apologize directly for my irritability and impatience, instead of just hoping it will go away and be forgotten.

Those are our recent highlights! What have you all been learning and discovering in your lives lately? What riches of knowledge and adventure have your curiosity and hunger to learn unearthed for you?

Posted in family life, musings, quotes

presence

“Asher picked out a rocket Popsicle while I parked the bike and looked for a spot in the sun, eventually setting on a rainbow-colored, oversized hammock. We climbed in and lay next to each other, his head cradled in the nook of my arm, and we swung slowly, gazing up at the giant sycamore trees, new green leaves silhouetted against the blue sky. It was the first time in recent memory that I’d stopped moving, thinking, planning, working, or teaching and done nothing but be in that moment. A moment, I might add, in which Asher stopped talking about Minecraft and Plants Versus Zombies. Instead, as we lay there gently swaying, we talked about spring. And homeschooling. And beauty. And peace and contentedness. And how nature can be a kind of religion. And how important it is to notice and appreciate. And about how sticky hands get when Popsicle juice drips on them.

“[…] When we’re not living in presence, we miss the little things – the bright spots that are there, even when we have to search hard to find them. The tiny growth spurts. The moments of brilliance. The sparks of joy. To experience these things we have to fully be here, open and present.” – Debbie Reber, Differently Wired

It’s tempting for me to be always immersed in my phone, or a book, or a coloring sheet, or even just my to-do list for the day. But I’ve noticed that when I actively engage with my children, when I am present in their games and conversation (even if I am just observing while making dinner or cleaning), their imagination is sparked, their reactions are more positive, their responses are more mature, and their smiles are brighter.

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(Also, they tend to be much more accepting of time apart if our time together is truly a time of connection and presence, which allows me to have more space for deeper renewal and refreshment when I need it.)

It isn’t just me, the parent, who benefits when I choose to be present – my children benefit as well. My presence assures them of my love. It demonstrates that they are worthy of authentic attention and connection. It gives them confidence in the value of their ideas. It gives them the opportunity to learn from any experience and wisdom I may have.

And it is in all the moments, silly and stressful, happy and hard, that a deep and lasting relationship can grow between us. If I choose to be mentally elsewhere for those moments, I choose to stunt rather than nurture that relationship. But if I choose to be present, I am choosing to water and fertilize that relationship, and to weed out all the other trivial things that compete with my children for my attention, emotional energy, and time.

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Being present means playing peek-a-boo with Aubade when she hides her face in her hands.

Being present means talking in a baby voice for hours because the mommy animals in the house want me to be their baby elephant.

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Being present means getting to cheer Limerick on when he chases a ball around the pool and finally manages to grab it, instead of staying oblivious to his persistence and success.

Being present means laughing when Rondel jumps into the pool and totally soaks me with the splash, instead of perceiving it as an interruption of my more important business.

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Being present means noticing how Limerick observes and investigates the world around him, constantly soaking up knowledge with his thirsty pattern-loving mind.

And most of all, being present means mutual openness, a sharing of happiness, and a fostering of love. Yes, I need space and time alone – but when I am with my kids, I am going to try to be fully present as much as possible.


If you liked the quote from Differently Wired, read my brief review of the book here and check back in June for the giveaway!

Also, check here for a list of some awesome pre-order bonuses you can receive for no additional cost if you order the book before June 12th!

Posted in family life, musings

waking in the night: a meditation on love

I lie on the low bed in the darkness, and my baby curls against me, resting her head on my soft chest and stomach (the stomach I resent when I try to dress for adult life but which functions so perfectly as a cozy baby pillow). Our breaths are the only sound, her faster, shallower breaths a counterpoint to my deep and steady rhythm. I slow the pace of my breathing to guide her into sounder sleep, hoping her body will follow mine. She is warm and solid next to me, tangible physicality grounding me in embodied reality and relationship. There are books I wanted to read, projects I wanted to work on, chores I ought to take care of, but I stretch out this moment much longer than necessary. There is such immense privilege in being the one whose presence can calm her fears and dry her tears; there is such wonder in being able to soothe and comfort another when I cannot do so for myself. I recall her newborn months, when I sat in the hospital rocking her, deep into the darkest depression I have yet experienced, and yet somehow able to calm and comfort her anyways.

Maybe none of us can completely accomplish that for ourselves; maybe consolation and peace are gifts we can give to others better than we can create them for ourselves, and which we must in turn receive from others if we are to experience them fully. My baby cries out for me to come to her and restore her to peace, to console her in the loneliness of the night; we grow, and become independent, and pride ourselves on our self-sufficiency and strength, and we stifle our own cries in the darkness. Maybe we have cried too many times into an unresponsive void, and have decided we don’t want to risk adding the pain of rejection and worthlessness to the burden we already bear. We forsake the openness and vulnerability of our infancy, protecting our hearts – and closing the door to the fullness of comfort and peace that only comes through the love and presence of another.

I come to my babies in the night, though I may be exhausted or frustrated, because I know the pain of crying when no one hears, and I don’t want that pain to be theirs. I lift them in my arms, my little ones wakeful and sad for reasons beyond their ability to explain. And in the teary eyes wiped on my shoulder, the little head laid against my chest, the arms wrapped around my neck, I receive gifts just as powerful as any I give: love, meaning, and worth. They remind me of my own need for love and connection even as they show my my own power as a giver of that love and connection. However weary I may be, all the sleepless nights, all the hours pacing and rocking and snuggling, all the worry and time and energy spent, are nothing compared to what I have received simply be being their mother.