Posted in musings

the virtue of hope

One of things I have learned from my depression is that hope, while certainly made easier by pleasant circumstances and positive emotions, is most emphatically a virtue. It is possible to cling to hope with raw and reddened hands, eyes blinded by night and storm, refusing to release that slender line though every fiber of one’s body and every echo in the tempestuous wind is shouting out the futility of holding on.

Hope is not a wish list for Santa Claus, or a fantasy of a perfect airbrushed future. Hope is a conscious choice to endure, a moment-by-moment fight to persevere, a decision to stay the course despite all odds and appearances.

Hope does not aim for a peaceful and indulgent future, where every want is satiated and every inconvenience eradicated: it could not derive its lasting power from such a weak and flimsy foundation. Hope is anchored in the everlasting love of God, looking towards a future in which every pain and sorrow will be redeemed, made beautiful, and given purpose.

Hope impels one’s feet forward through the valley of the shadow of death, to which no end can be seen.

Advent, in focusing our attention on hope, does not attempt to sugarcoat the suffering of the world with carols and cookies, but rather endeavors to give us the strength and the vision to press on through that suffering without giving in to despair or bitterness. With hope, we may be as small and weak as the one isolated candle flame that flickers in the darkness this first week of the season, but we are at the same time enervated by the raging and glorious power of unleashed fire. No icy cold can put out our light so long as our wick reaches deep into the wax that is Christ in us and for us.

In answer to the hope of the world, He came. To give us the hope to endure to the end, He came. In His coming, in the Christmas manger, in the weakness of a newborn baby, is all the strength we need.

Posted in musings

this day

some day, I won’t need to calm myself down with deep, measured breaths before making a routine phone call.

some day, I won’t feel insecure about my son’s differences and be afraid to take him places where he might stand out in a negative way

some day, I won’t build walls every time I get the chance to make a friend

some day, I will knock on a neighbor’s door even though it isn’t Halloween

I believe that I can change, and I believe that I will change, in the same way that a tree changes as it mature from a sapling to a giant – shaped by the primal clashing of the environmental forces around it with its own fierce urge to live and grow. I believe this because I have changed before…

this day, I no longer believe that a mistake makes me a failure as a person

this day, I no longer feel that I am personally to blame for every heartache or frustration in the people I love

this day, I advocate for my son the way he is and seek accommodations that will help him learn and grow

this day, I choose to swallow my fears and lean into community despite the challenges and inconveniences and anxieties that come with it

this day, I am stronger and braver and wiser than I was before, and some day I will be stronger and braver and wiser than I am now

what matters is not the speed at which I travel, but the direction of the path I take.

Posted in family life

dance to the music no one else can hear

So now, having just explained in great detail why I think special ed preschool could be a great help for Rondel despite my misgivings about the public school system in general, I am going to argue the other side against myself. Hopefully writing this out will help me make a decision! And if not, hopefully it is helpful or interesting to someone else in a similar spot.

First, you should know this about Rondel.

When my son is in a highly stimulating, fun, chaotic environment, his energy ratchets up so high that he can’t always control it. Simultaneously, especially if he is hungry or tired (or if another kid is pushing his buttons), his anxiety often escalates as well. Either of these things could be a struggle independently, but when combined they can make situations very difficult for him. His body feels out of control, his emotions feel out of control, and his external environment feels out his control. In response to that, he will often take actions that on the surface appear irrational or bizarre: he may get overly aggressive in his play, wrestling after his friends have asked him to stop; he may try to run away to escape the chaos; or he may break down into incoherent tears.

Birthday parties, amusement parks, playgrounds, noisy restaurants, music class, movie theaters, and other noisy places can all cause sensory overload and meltdowns. Vigorous physical play may be avoided because of concerns about falling, sensory overload, and the potential for explosive outbursts and aggressive behaviors due to fight-or-flight reactions. Perhaps most unfortunately, the kinds of things done by the teachers who work hardest to make their classrooms fun for most kids – busy, colorful places with lots of “activity stations,” fun music, dancing, games – may be precisely the things that aggravate kids with SPD. As a result, these teachers may find that the harder they work to make class enjoyable and to involve these kids, the more they shut down or overload. It’s hard to imagine a more potent recipe for frustration and misunderstanding on both sides.

Brock Eide, The Mislabeled Child


Second, you should know this about me.

One of the greatest struggles in my life – a struggle that I have heard countless times in the lives of my friends and family as well – is feeling that I don’t belong: that there is no group of people among whom I can be completely myself and at the same time completely loved. It is out of this struggle that my parenting philosophy was born. My goal as a mother is to give my children a relationship (and ideally a whole family community) in which they will be listened to, understood, and unconditionally loved. Whatever societal forces are pressuring them to fit into a certain mold or to act a certain way, I want our home to be the safe place in which those forces have no power.

Now, I also have hopes and expectations for my children. I want them to be thinkers and readers; I want them to be wise and compassionate; I want them to love deeply and speak kindly. But even the wisest person has moments of foolishness; even the kindest person has words they regret. In those moments, I want my children to know that my love will not cease or waver, that I will always love them for who they are even as I help them grow and mature. And I want them to know that the rate of their growth is never a cause for shame, regardless of how slowly they may be progressing. The direction and the effort are the things that matter.


With both of those things in mind, putting Rondel in a special preschool designed solely to help him acquire certain skills by a certain deadline seems antithetical to my whole concept of parenthood. He is not a flowering bush that I can freely manipulate by well-timed applications of different fertilizers or hormones; he is his own person, uniquely designed and gifted, with his own path and timeline to follow. It is helpful for me to know the ways in which he is different than “normal,” so that I can anticipate his struggles instead of setting him up for failure, learn how to help him through difficult situations instead of flailing about in the dark, and access the accommodations he needs to thrive – but it isn’t helpful to focus on those differences as things that are “wrong” with him and try to fix them or train them out of him.

And my fear is that he will think just that: that we believe his way of being is inadequate or wrong, that we don’t accept him as who he is, and that we are willing to put him in an environment that stresses his sensory and emotional systems to the point of overload in an attempt to change him into someone else. It’s hard to think of a better way to demolish a child’s confidence in himself or to damage his trust in his parents’s love and understanding. When the music plays that only Rondel can hear, I want him to dance to that beat with freedom and fullness, holding nothing back in his pursuit of the calling for which God has designed him, no matter how strange or awkward that dance may appear to those who are deaf to the song. Speech therapy we can get at a private clinic, without needing to compromise our ideals in the process; the other skills he needs for life will grow in time, as he learns their value, in the context of love and peace and belonging.

 

 

 

 

 

 

 

 

 

Posted in musings

when tools come with tainted memories

I grew up hearing horror stories about public schools.

Every time we drove past one, my dad would comment on the chainlink fences, the buzzing alarm bells, or the thick small-windowed walls. He would tell us about Mrs. Weinstein, his fourth-grade teacher, who was so nasty as to apparently have burnt a traumatic scar into his memory. He would regale us with the tale of how in elementary school he would ask for a bathroom pass and just scream in the bathroom at the top of his lungs because he was so bored/pent up/overwhelmed by the classroom environment. He would call them “jails for kids” (although my mom would always gently reply that it was hyperbolic to go that far).

My mom didn’t have nearly so many negative things to say, but I knew that she dropped out of high school and worked her way through community college and university to get a master’s in engineering, and considered self-directed, intrinsically-motivated learning to be far more valuable and efficient than teacher-dictated, extrinsically-demanded education.

After I met my husband, I learned how he had been bullied through elementary school, to the point of being anxious, angry, depressed, and aggressive as even a young child – his innate friendliness met with rejection, and his self-confidence and self-esteem dealt crushing blows that he still sometimes struggles to overcome.

And so when the supportive, understanding, encouraging women in the special needs ministry at my church encouraged me to seek an evaluation through the public school district, to see if Rondel qualified for any free services, I was apprehensive, wary, and unsure. Now that his evaluation is past and I know that he does qualify – now that the registration and enrollment paperwork sits in front of me on the table – I am still all of those things.

The woman who would be his teacher is, from what I can tell, an energetic, passionate, and intelligent person, who deeply cares about her students and all their unique ways of being (of which there are certainly many in a special ed preschool!). Her classroom and schedule are well-designed, full of all the things young children enjoy and all the activities that strengthen and challenge their developing skills. She even told me that based on my description of Rondel she would ask the OT to do a sensory consult for him in class and potentially give him access to occupational therapy for his sensory difficulties and their emotional sequelae. My concerns do not rest with her, but with the whole philosophy of standardized, forced education in general.

During our IEP meeting, the evaluators kept mentioning that this or that skill would be “necessary for kindergarten next year.” To succeed in kindergarten, Rondel would have to learn to sit and pay attention, to be quiet and listen for the majority of the time, to participate in group activities instead of sitting on the edges doing his own thing, to hold a pencil or crayon with enough finesse to write letters and numbers, to respond to directions, and to speak intelligibly. And critically, he would need to learn all of those things by August. To succeed in life, it will be useful and courteous to know how to sit quietly and pay attention to other people; it will be beneficial for forming friendships to be able to engage in group activities and respond appropriately to social cues; it will be helpful to be able to write and draw, but not necessary in an increasingly technical world; and it will be of great importance to speak so that others can understand, particularly for a child who loves to talk as much as he does! But there wouldn’t be any deadline on his acquisition of those skills. Without the impending shadow of kindergarten hanging over him, there would be no rush for him to develop those abilities in his own way and at his own pace – with the exception of his speech.

And it is because of the integrated speech therapy that I am considering preschool as a viable option for Rondel at this point, despite the negative backstory I have for public schools, and despite my plan to homeschool. No matter where the rest of his life takes him or what learning and education look like for him, he will be able to do better, with less frustration and fewer tears, if he can communicate his needs and ideas with the people around him. I want to give him this opportunity now to learn the skills he will need to do that, while he can still do “school” for only 7.5 hours a weeks instead of being expected to fit his life around an all-day, every-day schedule of external demands and schedules. If he grows in his other areas of weakness along the way (especially in social and sensory areas) – so much the better! One fewer hurdle to overcome later!

And if it triggers his sensory issues to the point where he has increased anxiety and meltdowns, we can pull him out. Trying the system out, in an attempt to help Rondel, does not mean we are tied to it forever – or for any arbitrary length of time, honestly. It is all about what works best for him, at this moment, in this context. If to him it feels like a “jail”, if all he wants to do is run away and scream, if it feels like his heart is being crushed – well, unlike my parents and my husband, he won’t have to stay in that environment for years while it molds his character and personality. For us, it can be just another tool in our toolbox.

Posted in family life

sensory play without sensory issues

As babies and toddlers, neither of my boys especially enjoyed being dirty and playing in the mud. I still remember the first time Rondel explored the soil in our garden of his own accord, and the poignancy of watching him touch the moist dirt without panic or revulsion (he was better with sand, but dirt was difficult, and mud impossible for a long time). Limerick would tolerate and investigate things, but never sought out the sensations, preferring to watch and observe; there wasn’t the overt sense of something being off or abnormal that there had been with Rondel, but there also wasn’t the “typical” childhood pleasure of immersing oneself in those physical sensations that I remembered from my own experiences.

Aubade, however, actively seeks out the dirt, and very visibly relishes getting wet, dirty, and muddy. While this of course comes with its own challenges (any ideas for persuading a baby not to shovel fistfuls of dirt in her mouth whenever the opportunity arises?), it is so incredibly refreshing for me to have a baby who initiates that kind of interaction with her environment. She is so bent on exploring and experiencing the world around her, with no hesitations, anxieties, or sensory discomforts to hold her back, and I love watching her!

Posted in family life

when a little boy turns three…

He knows birthdays involve cake, so he comes to you in tears with his sad tiny voice telling you he’s hungry, and when you ask him what he’s hungry for he answers, “cake!”

(You may have stayed up until 11:30 the night before baking said cake and want to cut into it just as much as he does! But these things must wait for the proper moment!)

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Six layer cakes require a ludicrous amount of buttercream frosting – as in, I used a whole pound of butter…

He may be so excited about being the center of the family circle, with everyone singing happy birthday to him, that he literally cannot contain his joy, and bounces up and down laughing the entire time.

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He may love rainbows so much that when the cake is cut and he sees for the first time the colorful layers within he may just squeal with delight!

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A rainbow cake is really the only appropriate choice for a child who has stayed up late with me pondering on the wavelength of different colors of light, how some colors can mix together to create others, and how white light can split apart into all the colors

He may be such a generous and inclusive little soul that he lets not only his beloved older brother but even the pushy and interfering (from his perspective) baby sister help unwrap his birthday presents.

And he may be so happy with his gifts that he spends the rest of the afternoon contentedly playing with them, with the family that he loves.

Happy birthday to a boy who is curious, intelligent, and observant like a scientist; who finds pleasure in order, symmetry, and patterns; who adapts his desires and whims to accommodate his siblings with a grace and maturity far beyond his years; who can be rough and wild with Rondel but gentle and protective with Aubade; who grows more independent every day and always loves to help and learn; and who still loves to snuggle with his mommy for any reason and no reason at all. It is such a joy to watch him grow – to see his understanding (emotional and intellectual) deepen and the lines of his personality and character emerge.

Posted in book lists, family life, musings

Charlotte’s Web

Fern loved Wilbur more than anything… Wilbur loved his milk, and he was never happier than when Fern was warming up a bottle for him. He would stand and gaze up at her with adoring eyes.

For the first few days of his life, Wilbur was allowed to live in a box near the stove in the pitch. Then, when Mrs. Arable complained, he was moved to a bigger box in the woodshed. At two weeks of age, he was moved outdoors. It was apple-blossom time, and the days were getting warmer. Mr. Arable fixed a small yard specially for Wilbur under an apple tree, and gave him a large wooden box full of straw, with a doorway cut in it so he could walk in and out as he pleased.

“Won’t he be cold at night?” asked Fern.

“No,” said her father. “You watch and see what he does.”

Carrying a bottle of milk, Fern sat down under the apple tree inside the yard. Wilbur ran to her and she held the bottle for him while he sucked. When he had finished the last drop, he grunted and walked sleepily into the box. Fern peered through the door. Wilbur was poking the straw with his snout. In a short time he had dug a tunnel in the straw. He crawled into the tunnel and disappeared from sight, completely covered with straw.

Rondel and I have begun reading Charlotte’s Web, by E.B. White, together, our first attempt at a legitimate chapter book. We’re proceeding slowly, at about one chapter a day, but already the story has captured his imagination.

He has commandeered Aubade’s pack and play to be his own little pig pen, where he can be alone and covered up with a blanket like Wilbur covers himself up with straw, but where his adoring and beloved friends (Fern in the book; Limerick and Aubade in reality; a mommy and baby bear in Limerick’s pretending) can sit and watch him through the mesh on the sides. Like Wilbur, he announces that he loves the bears “so much” because they love him and come visit him in his pig pen.

He was captivated by the tender and beautiful illustrations, courtesy of the one and only Garth Williams, of Fern holding Wilbur and feeding him from a bottle, and of Fern pushing Wilbur in a baby stroller with her doll. Wilbur’s special place in Fern’s heart, and the great love she gives to him and inspires from him in return, seem to make up his major impression of the book so far.

And for two consecutive nights now he has asked for me to move the pack and play into his bedroom so that he can sleep in there instead of in his bed, because, as he says “you are a little pig and this is your pig pen!” He can’t even stretch out all the way in there, which should serve as some indication of how absorbed he is by Wilbur’s world.

When a child’s imagination is so easily caught by a simple, gentle, well-told story, there is no need to be so anxious (as I often am, and as parents in general often are) about that child’s education and ability to learn. His mind is open and eager to learn, explore, create, and imagine – and new worlds, new information, and new friends to explain the world through their lives and adventures are only as far away as the pages of a good book.

Posted in family life

Vertuccio Farms Fall Festival

Our little family’s affection for pumpkins started early, with our pregnancy announcement for Rondel:178610_10151079181450496_178895070_o

However, it took us a year or so to find our favorite place to take the kids each fall! After this year, though, I will say that Vertuccio Farms is our official pumpkin patch of choice. We typically take advantage of their Toddler Tuesday offer and get in for half-price and the guarantee of avoiding school groups and field trips 🙂

The biggest draw is probably the giant air-powered jump cushion, thankfully (but somewhat inadequately) shaded, on which endless jumping and flopping and bouncing can take place. Even Aubade, already almost ready for her morning nap, got up on her knees and bounced up and down with a grin of pure delight on her face! Rondel loves it but has a tendency to get too aggressive and over-excited (this year, that looked like pretending to a be a scary cheetah and trying to tackle people – mostly Limerick, growl at people – all kids smaller than himself, and eat them – also mostly Limerick), which is our cue to move on.

We milked a model cow, slid down massive tunnel slides made from pipe segments, clambered over a spiderweb made of ropes, collected rocks, ate snacks, and chose pumpkins to bring home to carve. We also lost Limerick for a while but discovered him twenty feet up in the air ascending to the tallest tunnel slide, so all’s well that ends well – and I also learned that apparently orange isn’t a good color to choose if you want your child to stand out at a fall festival as half the kids there were wearing orange in some form or fashion.

In addition, this year there was a new activity: a hand-pumping station where kids could push plastic ducks down half-pipes from one horse trough to another by pumping up water. Both boys were fascinated by it, and I had to tear them away so we could make it home in time for me to get to work.

In fact, there were so many things to do that we came back a second time to do more, and to hit up our old favorites a second time!

All three kids were having blast climbing up the tire tower until I told them I wanted them to keep their shoes on unless we were on the air cushion (I’d found a piece of broken glass), and even let me get a rare picture of all of them simultaneously.

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My three crazy hooligans!

We got to see piglets running around trying to persuade the adult pigs to play with them, and I even found spare change in my purse to buy some goat food. Rondel let the goats eat out of his hand. I was so amazed. He stood perfectly still and held the food out for them without flinching as they licked it gently off his fingers (and it’s a different sort of sensation – I had expected much more of a reaction from him). I think that was his highlight from our second trip; I know it was mine, and I wish I had been able to get a picture of it.

I was able to get pictures of the boys doing the giant tube roll, though! It’s somewhat self-explanatory (although what isn’t obvious at first glance is that those tubes are heavy. I had to push the boys from the outside and it was hard work!)

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Despite the heat and the crowds (much better on the 31st than on the 24th, by the way), we had a great experience at Vertuccio and will definitely plan on going back next year. Just remember to bring lots of water, and be ready to get tired and dirty! In a place where the cultural trappings of fall are mostly absent from our natural environment, this makes for an awesome way to mark the change of seasons before the holidays begin.

 

Posted in family life

a small rant on stereotyping of baby dolls

I don’t really understand gender stereotyping of toys.

Other people have expressed the general concerns with the practice better than I can here, however, so I will skip straight to my particular and most pointed dispute with it: baby dolls are marketed purely for girls, when both boys and girls are highly likely to be parents some day and have babies of their own. If any real-life imitative play skill is going to be useful in adulthood, surely taking care of one’s own toy baby is! It’s even worse than isolating toy kitchens to the “girl” aisles and construction benches to the “boy” aisles, because it represents an even more fundamental part of life and of being human.

With that said, I don’t actually have baby dolls for any of my kids. They’ve so far always had real babies to play with by the time they were old enough to be interested in dolls, and stuffed animals can be a decent substitute in a pinch. But Rondel’s classroom at church has a baby doll, and it has been his sole focus during free play for the past month at least – he rocks the baby, feeds the baby, puts the baby to sleep, and dances with the baby during music. It makes a lot of sense to me, since play is a child’s way of understanding their world, and we have a baby at home! I just don’t see why it isn’t an accepted and even assumed part of every little boy’s life, as it is for little girls.

Posted in book lists, family life, musings, Uncategorized

celebrating St. Francis

I feel like the holidays come fast and furious once fall arrives! They are such a fun way to introduce or remind myself and my kids of the great men and women of God, and to help direct our own hearts back to Him as well.

St. Francis of Assisi’s feast day falls on October 4, less than a week after Michaelmas, providing a beautiful foil to the Michaelmas stories and themes of dragons, knights, and (spiritual or otherwise) battle. For of course, St. Francis is one of the gentlest saints in the liturgy: a man who gave up wealth and power; who befriended the outcast, the poor, and the sick; who rejoiced in the beauty of nature and loved animals as well as people with tenderness and understanding. While Michael illustrates the bravery and glory of fighting against evil, Francis illustrates the courage and beauty of seeking redemption and reconciliation.

(Of course, due to sickness and poor planning on my part, we didn’t actually celebrate until the 11th… better late than never I suppose!)

To introduce the boys to St. Francis, I checked out two books that seemed to have good reviews and were actually available at our local library. First:

St. Francis and the Wolfby Richard Egielski

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This is a legend, retold in a way that is satisfyingly scary for a younger audience, without being over the top, and while retaining an emphasis on Francis’s message of peace and love. It shows how the obvious solution to something scary, dangerous, or disliked – trying to get rid of it or destroy it – isn’t always as effective as trying to communicate and make peace. And really it is just a well-told, fun story. Rondel has asked for this book many times since we borrowed it, and enjoys acting out the various characters as well!

Brother Sun, Sister Moon, by Katherine Patterson

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This book is an illustrated retelling of St. Francis’s canticle of the creatures in words that are accessible for small children, yet still retain the beauty and majesty of the original. The illustrations are exquisite as well, with every page showing how the aspect of creation in question (sun, moon, fire, wind, and so on) touches and blesses our world, as the words describe how those things reflect and honor their Creator. I was concerned that this book would be too advanced for the boys, but they have asked for it several times and are always held captivated by the beauty of its poetry and art. It makes a good counterpart to the more “fun” story above, also!

In addition to the books, we tried to make a sun-and-moon window hanger, but ran out of steam partway through due to the aforementioned illnesses; if we had more energy, I would have also had us make a bird feeder so that we could practice kindness to the animals around us as well (there aren’t many other animals besides birds in the middle of a city, since we don’t have pets…). While we don’t have the cold weather that makes feeders a perfect gift for the birds in October in other parts of the world, there are many native birds that benefit from feeders targeted at their unique needs and adaptations. Ah well, maybe next year 🙂

In the meantime, my goal is to emulate St. Francis’s compassion and gentleness, beginning in my home with my family but hopefully spreading outward to the other people with whom my life intersects! I also hope that, like him, I would have the courage to do what is right regardless of how strange it looks to the people around me. He somehow managed to care deeply for people without being a people-pleaser – a combination which strikes me as both a worthy and a difficult goal.