Posted in musings

accepting autism when I want to be normal

I remember the first time I revealed my depression to another person, and the first time I admitted that I had wanted to commit suicide. It’s not an easy thing to be open about; it’s shameful, and dark, and has the potential to hurt the person you’re talking to quite a bit (especially if they knew you when you were going through it and didn’t open up to them until years later). I’ve found a way to accept it as a part of my story and talk about it now, though, and I hope when I talk about it that I can encourage others who experience it. I have a mental illness, I can say, without being ashamed or guilty. I have been in these dark valleys, and heard these poisoned voices, and felt the dank stagnant breath of despair on my face. If you are there, I can say, where hope seems entirely absent and all light is lost, where you are lost in a pathless wilderness and the very thought of finding a way out seems pointless, I have been there too, and I am a witness that it is possible to return to the land of the living.

Autism has been a more difficult name to claim for myself. While I don’t have a medical diagnosis, it’s not doubt about the validity of the label that stops me; I can see every symptom in my autistic son mirrored in myself, I score well above the cutoff for every ASD questionnaire I’ve ever taken, and it’s evident to others to the point that my husband laughed at me when I told him I wasn’t sure if I could be autistic myself.

Instead, I think what makes it difficult for me is the admission, in accepting this diagnosis, that I may struggle with certain things for the rest of my life without a “fix.” That some of the aspects of myself I’ve always hated, some of the traits I’ve never accepted, are part of my neurology that will never go away. I can take a pill to shut out the blackness of my depression; there is no pill that will help me fit in with a group, or know how to move my face the right way when I listening to someone talk, or recognize when a friend is being sarcastic and when they’re being serious. I can go to a therapist to talk through unhelpful thought patterns and try to replace them with healthy and positive ones so that a depressive trigger won’t need to set off a ruminative episode of self-hatred; I can’t go to a therapist to talk away the irritability caused by spending all day with three kids whose normal play and conversation feels like an assault of noise, or the emotional breakdown induced by a last-minute schedule change, or the heights of anxiety scaled every time a new event or social appointment is upcoming. I mean, a therapist could potentially help me find ways to cope with those physical and emotional reactions – but they are still always going to be there.

As we’ve gone through the process of Rondel’s diagnosis and my accompanying self-discovery, I’ve read and read blogs and articles from the #actuallyautistic community – I’ve sought to have my understanding shaped by the words of autistic adults and self-advocates. So I know that autism is just a different wiring, a different way of perceiving the world and being in the world. I know that very often it is social norms and expectations that make autism difficult, not autism itself – that is, the difficulties do not exist because autism is bad, but because it is different in a world not designed to accommodate differences. I love that autism has given me a mind like a database and an unfailing eye for patterns. I think I can give autism some credit for saving me from the girl drama of middle school and high school, for giving me dedicated and focused attention on things of interest and importance to me, for helping me to be an honest and trustworthy person, for developing my (often repetitive) love of books and reading.

But sometimes it is just hard. I don’t want to be a different person, but sometimes I’d love to be part of a conversation without constantly having to evaluate and compare my responses with the responses of the other people involved, without having to laugh at a joke even if I don’t get it at all, without having to guess whether a statement was meant to be funny or sarcastic or not. Sometimes I’d like to be invited when church friends or coworkers have a BBQ or a game night – and sometimes I’d like to receive an invitation with casual nonchalance instead of panicked uncertainty. Sometimes? – I wish I could actually be normal instead of just pretending to try to fit in.

violet_incredibles
“Normal? What does anyone in this family know about normal? […] We act normal, Mom, I want to be normal!” – Violet Parr, Incredibles
But maybe it is harder to try to be someone I’m not, and waste my life wishing I were that other, neurotypical, person, than learning to accept and embrace who I am, struggles and all. Maybe it is harder, in the long run, to wear a disguise every day of my life and pretend that I never need help or support. I just know that right now I’m still too scared to take off that mask.

Posted in musings

because prejudice ends up hurting everyone

Recently, when I mentioned I wasn’t yet part of any homeschooling support groups, a (non-homeschooling) friend mentioned a local co-op called Branches, so I looked it up. It is far more structured and school-like than I am interested in, and also has several concerning (to me) points in its code of conduct and statement of faith. When choosing a homeschool group, as when selecting a private school, it is important to read through to that level of detail because no matter where the co-op or school falls academically, it will be detrimental to your child if its culture differs dramatically from your home culture or endorses cultish or prejudiced beliefs.

Some of those concerning aspects were (unfortunately) fairly familiar to me – the parent must sign a strict statement of faith, and must cede to the group’s board the final word on the interpretation of that faith. Considering they are not my pastors, nor theologians, nor even members of my church, I don’t think they can legitimately claim to have that level of authority. I did appreciate their honesty, however, in stating that while they believe the Bible is the final authority it is their interpretation of that authority that will have the ultimate say… it reveals a weak point in Protestant understandings of religious authority in general.

However, one point that I had not run across before was as follows. In a list of forbidden behaviors, along with things like cheating and bullying, the group prohibits “personal appearance and behavior contrary to one’s biological sex.”

Interesting.

That is so broad and vague. While it was most likely intended in a transphobic manner, it is so loosely worded that it essentially prohibits all display of non-gender-stereotypical behavior. So… apparently in this group, math is only for boys, and the girls can’t be competitive in STEM topics or hope for a career as a scientist. Apparently, it’s inappropriate here for little boys to wear pink and purple shirts, or play house, or take care of baby dolls (because heaven forbid they grow up to be engaged and involved fathers when they have babies of their own). Apparently, girls need to wear makeup, do their hair neatly, wear skirts, and make sure they stay clean when they play; boys on the other hand should probably get muddy every so often to avoid an appearance of girliness. According to the words in this code of conduct, it is ok for girls to giggle and cry with each other, but boys should stick to anger and aggression if they have strong emotions. If a girl does just happen to be athletic, she should definitely stick with acceptable sports like gymnastics and volleyball, and avoid playing pick-up basketball or touch football with the boys. And just to be on the safe side, boys should play with boys, and girls should play with girls, to ensure that all the play is happily gender-conforming.

How can a child feel free to explore the fullness of the world around them if they have to be worried about stepping over a (socially-constructed, averages-based, generally-applicable, ambiguous) line all the time? Even a feminine, female-identifying, biologically female individual is going to have some aspects of their personality and behavior that fall outside female gender-stereotypical lines (for example, I am a cis-gendered female who likes my hair cut very short, does not wear makeup or heels, and has a career in the hard sciences). In this group, would that behavior be censored in a (transphobic) attempt to force all people into one or other of two black-and-white categories? I’m guessing it wouldn’t be – but the exceptions would be tolerated in an unpredictable, social-norms-based way (kind of negating the whole emphasis on biological differences) instead of by any sort of reliable and consistent rubric, which creates confusion and has the potential to lead to shame or stigma.

And finally, because this is what this kind of discriminatory rule is really intended to address, what happens to the child who actually struggles with gender dysphoria? Here, they would not be met with support and help, but with shame and rejection. Here, they would be told that because their brains and their bodies aren’t in sync, they are unfit to be part of an educational activity with other children (a mixed-gender educational activity, no less). Here, they would be told that the shape of their body is more important than their identity, their natural inclinations, their talents and giftings, and their mental health and emotional well-being.

That isn’t ok with me.

Trying to discriminate against one group of people usually ends up this way, with the implementation of vague social rules that constrain and restrict all sorts of unintended behaviors while adding to the stigma and isolation faced by the target group. I would rather be with people who may not always act as I would, but who accept and love each other anyway, around whom I can be my authentic self and know their authentic selves. While this co-op may have good things to offer, they don’t outweigh the negatives of prejudice and social control. After all, we are homeschooling in part so that our children can be free to explore, learn, and grow in their own time and in their own way; we don’t need a group of self-appointed parental “experts” trying to shape us into their acceptable mold anymore than we need the public school system doing so. And I am sure that in the right time, we will find the right group and homeschool community for our family.