Posted in autism acceptance month

stims!

This post is part of my april autism series for autism acceptance month. Visit the first post here for links to the rest of the series!

Before we began Rondel’s diagnostic process, I had never heard the words “stim” or “stimming” – so I’ll assume it’s new to a lot of you as well.

“When we feel an emotion or a collection of emotions very powerfully, stimming can help us manage these feelings without overloading. Often emotions like sadness, anger, or anxiety will prompt stimming as a way to both experience these less pleasant emotions while also keeping our cool.” – The Stimming Checklist

Essentially, a stim is a behavior that provides sensory, social, or emotional regulation to a person. Some of the most familiar (or stereotyped) stims among autistic people are hand flapping, rocking, and head banging – but to stop at those would be extremely limited and inaccurate. The Stimming Checklist has accumulated over 1400 different stims from user submissions (although some are essentially repeats as people submitted different wordings of the same behavior, there are still a lot), just to give you an idea of the diversity and range of stimming behavior! They also give a more detailed description of what stimming is and why people may stim, including the above quote about stimming for emotional regulation.

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From the Ausome Cork facebook page: 8 Functions of Stimming

My most reliable stim is skin picking. It can be embarrassing at times, since my upper arm is dotted with scars and scabs, but in the moment it is less noticeable than something like hand flapping (or running away screaming, lol), so I keep doing it. The sensation of it helps to alleviate almost any kind of tension, and also helps me stay focused on something if my thoughts are wandering (maybe by occupying the part of my brain that would otherwise be distracting me!). For example, if people around me (or even in a movie) are arguing and saying hurtful things, even if they are sarcastic or joking, I will start to pick to help calm down my physical reaction to the emotional turmoil I’m sensing around me. On the other hand, I’ll also pick if I’m bored and can’t do anything because I’m stuck waiting somewhere.

Hand flapping and deep breaths with loud exhales are stress-reducing in the way that pushing down the valve of a pressure cooker reduces the internal pressure – they cut out a lot of tension very rapidly but in a very dramatic manner – and I tend to only stim that way in the privacy of my own home. In class or other lecture-type environments, I write (notes, thoughts, or the alphabet), calculate irrational square roots by hand, draw geometric designs on grids, play games on my phone or laptop, or else generally become unable to sit still or pay attention due to my mind wandering off into some far off land and my physical tension steadily rising.

While stimming behaviors may appear strange or odd on the surface, therefore, it is important to understand that they can play a significant role in the life of an autistic person, as I am hardly a unique or extreme example. Trying to force someone to stop stimming altogether is going to be harmful in the long run: it will deny them access to some of their coping strategies for sensory overwhelm or emotional stress, and force them to spend significant amounts of energy and focus on holding in their stims at the expense of other things.

“If anything, stimming improves my concentration. It’s a release, like sneezing or scratching an itch. Have you ever tried to ignore an itch? What if someone told you it was wrong to scratch yourself to relieve an itch? What would that do for your concentration?” – Cynthia Kim, Musings of an Aspie

However, not all specific stims are healthy, no matter how helpful they may be in the moment. My skin picking certainly falls into this category, as does any other self-injurious stim. In these cases it is worth the effort to find a replacement stim, if at all possible (I haven’t found one for myself yet), and it is emphatically better to consciously redirect towards a positive replacement stim than to simply try to eliminate the damaging one. Without that deliberate replacement, it is likely that an equally unhealthy stim will take over instead (for example, I tried to stop picking my arm last year and ended up creating sores all over my legs. Not helpful at all, that.) So if I ever figure out a good strategy for finding a replacement and making it stick, I’ll be sure to update you…

Do you stim? What do you do and why? Does someone you know? What do you think about it? It’s ok if it seems weird 🙂 – I sometimes think my own stims are weird even though I know why I do them and how it helps me!

 

Posted in sqt

{sqt} – emotional self-regulation

In our house, we have big emotions.

It’s not too surprising, all things considered. Paul likes to attribute my temper to my “Cuban spice” (which is always highly embarrassing), and I tend to believe it is related to my autism (see an amazing article here which could have been written by me if only I were that insightful and eloquent), but wherever it originates from it comes on quickly and lasts indefinitely (forever really, unless I put in a lot of mental and emotional effort). Rondel is similar – flaring up like a match at an unexpected change or a trivial argument or finding out he was wrong about something he thought was a fact – although I’m not yet sure if he will be a grudge-holder like I was as a child. Limerick is constantly pushing himself, and will break down in frustration if he can’t accomplish something he feels he should be able to do. Aubade still uses shrieks and screams to communicate most of her (very strong) opinions and feelings, since she’s only just starting to take off verbally.

So right now, while academics are important and interesting and fun, I feel that emotional intelligence and self-regulation are also a very important area of emphasis for us. It may not come naturally for most of us in this household, but as I have learned over the years it is very helpful in life overall, so it’s something we’re consciously working on together: and these are some of the ways we’re doing that.

  1. Affectionate Physical Touch (e.g., hugs, snuggles, and read-alouds): Little kids are very physical creatures, and so making sure we have lots of time snuggled up together reading books, or letting them lounge on top of me while we’re playing with toys, or making a comforting hug the priority in a meltdown situation, is helpful in a number of ways. It acts as a preventative, helping keep emotional systems running smoothly so that crises are less likely to occur; and it acts as a balm, soothing and quieting the overwhelmed nervous system so that the rational brain can regain control and come up with a solution to the triggering problem. All three kids will come to me throughout the day for a hug when they are feeling sad, overwhelmed, or disconnected.
  2. Physical Play (e.g., running, wrestling, jumping on the trampoline): Going back to the physicality of children – but also appealing to research on the value of exercise for emotional health – wild, active physical play is also very helpful for learning to handle big emotions. Especially on days when everyone is struggling with irritability, and small triggers are escalating into large events, running and wrestling together seems to help us all shake off the mood fog and reconnect with each other in a positive way. So far this has been something I’ve had to initiate, as the kids seem to forget how good it feels to be active when they are grumpy and quarrelsome, but I’m hoping that as they grow they’ll be able to choose it on their own more often, as their bodies let them know they need it.
  3. Bodily Needs (sleep, food, water, sensory peace): This is kind of a broad one, but basically it is hard for a brain, especially a young developing one, to focus on managing emotional responses when a more urgent physical need is unmet. So meltdowns tend to happen more frequently when people are tired or hungry, or in overstimulating environments (crowds, loud noises, unpredictability, flashing lights, information overload, uncomfortable clothes, etc.). There are some easy physical ways to reduce the burden on your brain in these situations, such as never leaving home without snacks and water bottles, and never forcing yourself or your children to stay in an environment that is stressful and uncomfortable. For example, I let Rondel wear T-shirts and athletic shorts to church and take off his shoes in class, and the church has noise-reducing headphones that he can wear if the noise is bothering him. These accommodations reduce the amount of negative input his brain is dealing with, which in turn enables him to use more energy on social and emotional functions.
  4. Mindfulness: Ok, but sometimes you can’t prevent the emotions or avoid the triggering situation, and you still have to learn how to control your own reaction to the event. This can be so hard when your emotional reactions tend to hit you like a punch in the stomach with no prior warning… but what I have found to be very helpful for me is simple mindfulness practice. When I am present in the current moment and aware of my body, I can begin to detect clues that my negative emotions are building up, and try to take steps to defuse them before they explode. I can choose to close my eyes, breath deeply, and focus on the breathing for a few seconds, letting my diaphragm trigger my vagus nerve to calm my body, mentally stepping away from the situation I can’t truly leave in the moment, giving myself a space to think and decide how I want to react before the words leave my mouth. I don’t think my kids have quite figured out how to take deep breaths yet, but we’ve worked on taking that space before reacting (in real time with conflict situations) and it was helpful for them as well.
  5. Mediation and Modeling: Since my kids are still so young, I find myself stepping in when arguments begin to escalate into more emotional conflicts. My goal in these moments is not to solve their conflict but to walk them through the process of resolving it themselves. I hug them, I listen to each one of them tell me what is going on from their perspective, and I attempt to rephrase the situation so that they can both agree that I understand (my initial understanding is often incomplete, and they will correct my phrasing until they are satisfied I understand). Then I will ask each of them in turn what idea they might have for moving on from the conflict, and help them come up with ideas if necessary until they can both agree on one. Sometimes they are able to go through this process independently, and I am so, so proud of them when they do!
  6. Peacemakers Cards/Time-in Toolkit from Generation Mindful: This tool for emotional development has been more than worth the cost for us. Currently, we primarily use the peacemakers cards and the accompanying poster and stickers. I will hold out the deck of cards and let the boys take turns choosing ones, and we’ll spend time talking together about what the cards say: phrases such as “I am kind,” or “I stick with things and get things done,” or “I am adaptable – let’s move and dance!”
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    The “Peace Dolphin” overview card, with the five individual cards from the poster. We recently did Peacemakers after a big fight and randomly pulled three dolphin cards in a row… they were extremely helpful in processing the event, handling the emotions, and planning for the future.

    We talk about ways the boys have recently lived out those phrases, or times when we saw examples of it in a book we love, or situations where it might be challenging to embody them. For card with an action, like the last one in the list above, we’ll get up and act it out (it’s always fun to start silly dancing around the bedroom, after all!). I realize this may sound dull but the boys ask me if we can do Peacemakers cards on a regular basis, and it has led to some great conversations. he other poster in the toolkit has a lot of suggested strategies for calming down in emotional crisis, as well as a few charts representing different feelings in comparison to each other, and those have been helpful as well. Sometimes it’s hard to think of a coping strategy in the moment, so having the visualization on hand can be useful.

  7. Prayer: Of course prayer. Always prayer. Prayer for the fruits of the Spirit in my life each day. Prayers for peace, almost as a mantra, over and over again in the worst times. I remember when Limerick was little and I’d be hit by a wave of anxiety or stress that I would pray “Father, give me peace. Jesus, give me peace. Holy Spirit, give me peace.” Simple enough to repeat when I had no head space for words or complex thoughts, powerful in its reminder to me of the Trinity in all His love and presence. Prayer for connection with my Father, just as important for me emotionally and spiritually as is my young children’s connection to me and Paul is for them. Prayer to the saints,to have their community and support with me when things are too overwhelming for me on my own. Prayer to Mary, the mother of the church, who loves me and my children and helps me to be a better mother to them. Scripted prayers when I’m feeling disconnected and my own words won’t flow; spontaneous prayers when my heart is crying or rejoicing. Emotional regulation is hard for me, and probably always will be – I can never seem to find the middle ground between keeping everything in and letting everything out! But as in every other area of life, God in His grace is sufficient in my weakness: loving me as I am and helping me to grow.

This doesn’t even go into things like self-care and quiet time and community, which are all so helpful for lowering one’s negative emotional baseline and raising one’s trigger threshold – there are so many ways to help develop these skills and create a protective buffer around areas of weakness to keep them from causing damage and regrets. But these seven are some that I found particularly valuable for our family in this season of life, and I hope that they are helpful for you as well!

I’m linking up with This Ain’t the Lyceum today, so head over and read some of the other Quick Takes!

What are some strategies you use for keeping your emotions from getting out of control? What helps you the most in moments of overload or anger?